Saida Abu Bakar is the President of DEBRA Malaysia (Dystrophic Epidermolysis Bullosa Research Association Malaysia), part of the global DEBRA network supporting people with Epidermolysis Bullosa (EB) and other rare skin diseases. She is also the founder of Epidermolysis Bullosa Management Services (EBMS), a social service company focused on patient advocacy and support. With a background in early childhood education and entrepreneurship, Saida combines governance, community development, and patient-centered leadership. Actively engaged with DEBRA International and GlobalSkin, she contributes to national, regional, and global dialogue on rare diseases, skin health, and health equity. Her leadership connects lived experience with practical solutions for treatment, management, and policy inclusion.